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Key TakeawaysMental health disorders are more likely in children with cerebral palsy.The increased prevalence of mental health disorders in children with cerebral palsy is heavily linked to physical issues such as increased pain and decreased sleep.Because of the wide range of disabilities that exist alongside cerebral palsy for many individuals with the condition, exact causation can be difficult to quantify.

Key Takeaways

Mental health disorders are more likely in children with cerebral palsy.The increased prevalence of mental health disorders in children with cerebral palsy is heavily linked to physical issues such as increased pain and decreased sleep.Because of the wide range of disabilities that exist alongside cerebral palsy for many individuals with the condition, exact causation can be difficult to quantify.

Cerebral palsy (CP) may be one ofthe most common pediatric disabilitiesand yet, according to experts, it’s understudied in adults.

There is concern amongst many in the disability community that this lack of knowledge is leading to adverse effects for those with the condition, especially when it comes to mental health.

In my experience as someone with the condition, that lack of focus on mental health begins in childhood. Luckily, the conversation and research around mental health for those with CP is expanding.

Cerebral Palsy Enters the Wider Discussion

The current concern partially stems from cerebral palsy having re-entered the spotlight over the course of the pandemic. The CDC placed it on its list of conditions that could heighten the severity of COVID-19, with research from physicians at the Mayo Clinic finding that much of the concern lies with “impaired movement and function of the diaphragm muscle.”

For their part, the CDC’s concern is more focused on “underlying medical conditions, living in congregate settings, or systemic health and social inequities.” In other words, while more research needs to be done about how COVID-19 intersects with cerebral palsy, the largest federal medical organization acknowledges that those with CP are at higher risk because of societal factors. In essence,ableismkills.

Adam Cohoon, an accessibility advocate and artist, shares that there was no mental health specialist to provide support during childhood. This was despite the myriad of medical specialists who Cohoon was interacting with on a regular basis.

“It’s weird, growing up with CP it seemed like I had a medical team for everything else. But there was nobody on my medical team actually looking at my mental health. You have eye doctors, orthopedic specialists,  breathing specialists, educational specialists, everything else is actually talked about other than my mental health.”

Adam Cohoon, Accessibility AdvocateIt’s weird, growing up with CP it seemed like I had a medical team for everything else. But there was nobody on my medical team actually looking at my mental health.

Adam Cohoon, Accessibility Advocate

It’s weird, growing up with CP it seemed like I had a medical team for everything else. But there was nobody on my medical team actually looking at my mental health.

Cohoon says that the health tools being made available due to pandemic-related isolation, particularly those related to technology, need to remain even as restrictions lift.

“I don’t want people to think, ‘COVID’s over,  let’s put everything back in the box.’”

In their words, “These results could have been observed because adults with CP present with many physiological, psychological, social, and health-related risk factors that have been shown to be associated with depression and anxiety in the general population such as multimorbidity, increased pain, functional limitations, noncommunicable diseases, difficulties with social relationships, and poorer sleep.” While this work was focused on adults, the authors pointed directly to the research area’s disproportionate focus on children—leading to “a lack of evidence in adults with CP”—as a reason for their study.

Despite that heavy focus on children with cerebral palsy,Amanda Leduc, a disability advocate and author, repeats a common refrain of many in the community: That mental health really wasn’t discussed in relation to her cerebral palsy.

“I don’t think we talk about the connections between CP and mental health enough. The cumulative toll of physical strain on the body and how that impacts one’s day-to-day has a tremendous impact on mental health—often because of pre-existing ideas that society has around ‘productivity’ and what a person must ‘do’ or ‘be capable of’ in order to show themselves as having value.”

What Are Learning Disabilities?

When you’re a kid with cerebral palsy, it’s easy to focus on the physical aspects of your brain damage. Spasms are easy to see, wheelchairs and other adaptive equipment are costly to sort out and take an inordinate amount of time to organize; there are endless medical appointments to get to, orthotics to get fitted—the best part is picking out the design—and surgeries to worry about.

I traded physical education classes for physio appointments, my parents enrolled me in specialty physical therapy programs and sessions where I learned to ride a wheelchair up an escalator—to this day, I’ve only fallen twice. My only childhood memory of mental healthcare was being thrown out of an elementary school counselor’s office for being too angry—my legs went so spastic that I crawled out of the appointment like that scene inThe Grudge. I only saw a therapist on a semi-regular basis during university.

ForDom Kelly, a disability justice advocate, his experience of mental health care was within other frameworks—like during eating disorder and alcoholism recovery—rather than in connection to his CP. He says that the number of conversations he’s gone on to have about cerebral palsy and its intersection with mental health have grown through social media.

“The folks that I knew who had CP, I never really talked about that, about the impact of our CP on our mental health.  And now, I’ve talked to more and more people who also experienced some of the medical trauma,  that also had experiences in school when they were kids where teachers would say and do things, other kids would say and do things, that actually impacted theirself-esteemin ways that maybe didn’t show up, or we weren’t aware of until we were older.”

Signs Your Child May Be Struggling With Mental Health Issues

Research Still Heavily Focused on Parents

“Children with CP are susceptible to mental health disorders because of a variety of physical risk factors and factors that affects social development, including communication problems, developmental comorbidities, and mobility restriction.”

The cumulative toll of physical strain on the body and how that impacts one’s day-to-day has a tremendous impact on mental health—often because of pre-existing ideas that society has around “productivity.”

Much of the research on cerebral palsy and mental health acknowledges that with the wide spectrum of symptoms and co-morbid conditions that can appear with cerebral palsy (such as epilepsy and intellectual disability) the answers as to why mental health conditions are more likely in the CP population are difficult to entirely pin down.

At this point, the next stage of research appears to be to track the effectiveness of mental health interventions in those with cerebral palsy at all ages. Kelly says that one oft-overlooked aspect of his experience is that his mental health can be more disabling than his cerebral palsy, even when the latter may be more obvious or more often discussed.

“I also have a couple of different mental health disabilities and, talk really, really, openly about those and that sometimes my mental health disabilities, I feel, are more disabling than my CP. Depending on the day when you talk to me.”

What does that mean for me? I’m not sure if vindication is the right word—it’s helpful to know that I’m not alone, after all—but it does make me hopeful that children with CP will have an increased level of access to mental healthcare.

Perhaps more importantly, it’s another area of lifelong care for those with cerebral palsy to improve as we begin to drag the medical community-at-large away from only conceiving of cerebral palsy as a pediatric condition.

Lastly, speaking to people with CP who have found and built a community around mental health discussions means that, like those who spoke to Verywell Mind for this story, I feel less alone.

What This Means for YouDespite the physical symptoms of cerebral palsy being relatively heavily researched, mental health concerns have been addressed much less. This lack of research is reflected in the concerns of many in the disability community with cerebral palsy, who are calling for mental health to be researched and discussed more.

What This Means for You

Despite the physical symptoms of cerebral palsy being relatively heavily researched, mental health concerns have been addressed much less. This lack of research is reflected in the concerns of many in the disability community with cerebral palsy, who are calling for mental health to be researched and discussed more.

Despite Growing Research, Mental Health Still Understudied in Those with Cerebral Palsy

3 SourcesVerywell Mind uses only high-quality sources, including peer-reviewed studies, to support the facts within our articles. Read oureditorial processto learn more about how we fact-check and keep our content accurate, reliable, and trustworthy.Brandenburg JE, Fogarty MJ, Sieck GC.Why individuals with cerebral palsy are at higher risk for respiratory complications from COVID-19.J Pediatr Rehabil Med. 2020;13(3):317-327. doi:10.3233/PRM-200746Smith KJ, Peterson MD, O’Connell NE, et al.Risk of depression and anxiety in adults with cerebral palsy.JAMA Neurol. 2019;76(3):294-300. doi:10.1001/jamaneurol.2018.4147Whitney DG, Warschausky SA, Peterson MD.Mental health disorders and physical risk factors in children with cerebral palsy: A cross‐sectional study.Dev Med Child Neurol. 2019;61(5):579-585. doi:10.1111/dmcn.14083

3 Sources

Verywell Mind uses only high-quality sources, including peer-reviewed studies, to support the facts within our articles. Read oureditorial processto learn more about how we fact-check and keep our content accurate, reliable, and trustworthy.Brandenburg JE, Fogarty MJ, Sieck GC.Why individuals with cerebral palsy are at higher risk for respiratory complications from COVID-19.J Pediatr Rehabil Med. 2020;13(3):317-327. doi:10.3233/PRM-200746Smith KJ, Peterson MD, O’Connell NE, et al.Risk of depression and anxiety in adults with cerebral palsy.JAMA Neurol. 2019;76(3):294-300. doi:10.1001/jamaneurol.2018.4147Whitney DG, Warschausky SA, Peterson MD.Mental health disorders and physical risk factors in children with cerebral palsy: A cross‐sectional study.Dev Med Child Neurol. 2019;61(5):579-585. doi:10.1111/dmcn.14083

Verywell Mind uses only high-quality sources, including peer-reviewed studies, to support the facts within our articles. Read oureditorial processto learn more about how we fact-check and keep our content accurate, reliable, and trustworthy.

Brandenburg JE, Fogarty MJ, Sieck GC.Why individuals with cerebral palsy are at higher risk for respiratory complications from COVID-19.J Pediatr Rehabil Med. 2020;13(3):317-327. doi:10.3233/PRM-200746Smith KJ, Peterson MD, O’Connell NE, et al.Risk of depression and anxiety in adults with cerebral palsy.JAMA Neurol. 2019;76(3):294-300. doi:10.1001/jamaneurol.2018.4147Whitney DG, Warschausky SA, Peterson MD.Mental health disorders and physical risk factors in children with cerebral palsy: A cross‐sectional study.Dev Med Child Neurol. 2019;61(5):579-585. doi:10.1111/dmcn.14083

Brandenburg JE, Fogarty MJ, Sieck GC.Why individuals with cerebral palsy are at higher risk for respiratory complications from COVID-19.J Pediatr Rehabil Med. 2020;13(3):317-327. doi:10.3233/PRM-200746

Smith KJ, Peterson MD, O’Connell NE, et al.Risk of depression and anxiety in adults with cerebral palsy.JAMA Neurol. 2019;76(3):294-300. doi:10.1001/jamaneurol.2018.4147

Whitney DG, Warschausky SA, Peterson MD.Mental health disorders and physical risk factors in children with cerebral palsy: A cross‐sectional study.Dev Med Child Neurol. 2019;61(5):579-585. doi:10.1111/dmcn.14083

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